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Notes

How I live with dementia - notes that keep me focused

Posted by admin at 25th November, 2008

For whom to I speak?

Why do I speak up?

Why do I speak to these issues?

What I want/need beyond room, board, good people who care about me, a safe environment, lots of Heinz Ketchup and an extra long bed

Say hello instead of good bye

A sense of wholeness (half full or empty is the wrong view)

The probability for personal growth and development while declining

Activities vs. purpose

A purpose – activities to fulfill it

Personal responsibility for myself

Enabling/disabling and re-abling

Living in today…a dignified, private and proud sense of myself

Visiting yesterday(s) (Reminiscing is over rated and over used)

Truth telling – reality/validation/change the subject/lies/fibs/half truths

The medical model is neither medical nor a model when applied to PWD

Restarting in the middle of the process is gonna cost everyone a fine

Managers who don’t

True stress reduction for caregivers

Living an ambiguous today and an unknown tomorrow

A few words about your cost, my cost, and regulations

Spend a few more cents on advocacy and a few less on marketing

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