Posted by
RichardTaylor at
28th September, 2009
“I know dementia when I see It.” several Neurologists have shared with me. One even told me he could diagnosis Alzheimer’s in a patient while he was sitting across the hall in his office and could only see the patient through a crack in the door across the hall. He made this claim because most folks who came to him for a diagnosis were so deep into symptoms it truly did not take a member and diplomat of the American college of neurologists to make the diagnosis and be accurate more than 90% of the time.
One all too famous neurologist once told me when asked by yours truly how he “knew” someone had dementia, “After doing this for 15 years I can smell it (Alzheimer’s that is) it.” Dementia is a matter of degrees. It is not black and white, except when it is black and white and then you do not need a co-pay to discover it for yourself in others. The issues for folks who have fading cognitive skills are not what kind, so much as they are what can I do about it - it being the fading cognitive skills. (Yes, there is value in checking to see if the type of dementia you have can be “cured.” Yes there is some value in knowing what type of dementia you “probably” have, so you can be prepared for the symptoms, progression, and severity of the symptoms clustered around that particular form of dementia.)
BUT, what are most useful to you to find out from a physician are the personalized answers to questions such as: What types of socialceuticals must my family and I invent to enable me to continue to live a purpose-filled life? How will you manage and support my family and me? How do you support others in your practice with my diagnosis, and can we all get together in a group on a monthly basis? How fast do you think the symptoms of my form(s) of dementia will progress? What are the signs I should look for that tell me it is time to come back to meet with you? How to you manage stress in caregivers of individuals with my diagnosis? How do you feel about using drugs to dampen agitation in people with dementia?
Make up your own list and bring it with you. Write down answers. If they do not seem to satisfy you, tell the doctor, and if you are still dissatisfied - change physicians.
Stand up and speak out. You are the consumer/customer. It may be that no doctor has all the answers you want/need. But, you decide.
Richard
I sniffed at his response,
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